Future Presentations:


Past Presentations or Articles:

December 2016

“Patients as Innovators and Partners” HIMSS Connected Health Conference. Washington, DC.

April 2016

“New Definitions of ‘Patient Engagement’” HxR Healthcare Refactored. Boston, MA.

November 2015

“Lessons from a Medical Journey” Keynote. Stanford’s Medicine X Pop-up. Boston, MA

July 2015

“Inspired Design Opens Minds” International Year of Light, July 2015.

June 2015

“Engaging and Educating with Light” in Texas Assistive Technology Network, June 2015.

April 2015 “Patient Centered Design” in Healthcare Refactored Boston, MA, April 2015.

March 2015

“Learning from Light: Innovative Path to LightAide” in the 30th Annual International Technology and Persons with Disabilities Conference (CSUN), March 2015.

January 2015

January 29, 2015, Orlando, FL: “LightAide: Impact Review” in ATIA 2015.

December 2014

December 3, 2014, Lexington, MA: “Learning from Lights” in Cotting School.

November 2014

November 6, Framingham, MA: “Parent Perspectives in Pediatric Palliative Care” in Partnering with Professionals Conference by Family Voices and Federation of Children with Special Needs.

November 15, Lexington, MA: “Learning from Lights” Burr Family Conference in Cotting School.

November 24, Boston, MA: “Eye on Education: Local Mom Invents Learning Tool for Blind Children” CBS Boston-WBZ,

November 30, Waltham, MA: “Empower You: Lessons from a Medical Journey” in Hydrocephalus Association Boston Community Network.

October 2014:

October 30-31, Boston, MA: Boston Children’s Hospital Innovation Summit Rising Star Award Recipient

September 2014:

September 5, Boston MA: “Empower You: Lessons from a Medical Journey” in Abilities Expo.

August 2014:

August 13: Mark Stephenson: “Seeing is Believing: The power of innovation”

July 2014:

“LightAide: Technology for Autism” Indianapolis, Indiana, July 2014.

June 2014:

June 28, Washington DC: LightAide in CDKL5 Conference.

June 1, Darrell Halen “Mom’s Bright Idea Helps Visually Impaired Kids Learn” in MethuenLife.

May 2014:

May 7-8, Marlborough, MA: “High Tech and Low Tech: Finding Appropriate Developmental Tools for Infant and Toddlers Who are Visually Impaired” in Massachusetts Early Intervention Consortium.

May 9, Andover, MA: Professional Center for Child Development ‘Children First’ Award &

May 13-14, New York, NY: “Illuminated Learning” in HxRefactored.

May 15, Groton, CT: “The Connected Patient” in NESHCo Conference.

April 2014:

April 2, Boston, MA: “LightAide History and Demonstration” for ED 384: Instructional Strategies for Students with Severe or Multiple Disabilities, Boston College.

April 6-8, Cleveland, OH: “Lights for Learning” in IES Light+Behavior Conference.

April 30, San Francisco, CA: Edison Awards Silver Award for LightAide by Philips.

March 2014:

March 5, Kathleen Hoffman “E-Caregiving: Dr. Catherine Rose and Alexis (Part1)”

March 5, “Get Informed and Get Empowered About Your Child’s Health” in

March 8, Boston, MA: “Empower You: Lessons from a Medical Journey” in Visions of Community, Federation of Children with Special Needs.

March 10, Kathleen Hoffman “E-Caregiving: Dr. Catherine Rose and Alexis (Part 2)”

March 12, Norwood, MA: “LightAide: Lights for Learning” in “Focus” on Vision Impairment & Blindness Conference Meeting the Needs of Individuals with Intellectual Disability & Vision Loss

March 25-29, Nashville, TN: Consumer Leader with New England Genetics Collaborative at American College Medical Genetics Annual Meeting.

January 2014

Boston, MA: Keynote, MedStart with Hacking Medicine @MIT & ONC Blue Button Hackathon.

Orlando, FL: “LightAide: Using Interactive LED Lights to Engage, Do and Learn” in ATIA 2014.

December 2013

Orlando, FL: Partnership for Patients’ and Family Engagement Network Advocate Training, IHI’s 25th Annual National Forum on Quality Improvement in Health Care Conference, December 2013.

October 2013

Briarcliff, NY: LightAide Overview. Digesting Health Information in Engaging the Patient.

September 2013

Stanford, CA: “Engaged, Equipped, Enabled and Empowered by LOVE” in Medicine X.

Cambridge, MA: LightAide at Harvard School of Education.

Boston, MA: “Expanding a child’s world with Light” in Abilities Expo.

Natick, MA: “Lights for Learning” for MassMatch, Massachusetts Rehab Commission.

Washington, DC: ONC Consumer Health IT Summit Panel.

Andover, MA: “It’s What We Believe.” WINergy meeting.

July 2013

Scottsdale, AZ: “Pilot for the Journey”, “We are in CHARGE” and “Lights for Learning” in CHARGE Syndrome Conference.

Chicago, IL: “Unlocking your Superpowers to Advance your Career.”

November 2012

Newport, RI: “Lights for Learning” in Northeast AER.

August 2012

“A is for Alexis”

January 2012

LightAide, Produced by Tomorrow Media,

July 2011

Orlando, FL: “Creating Calm from Chaos: From the Driver’s Seat” in CHARGE Syndrome Conference.

March 2011

Boston, MA: “Creating Calm from Chaos” in Federation of Children with Special Needs Vision of Community Conference.

April 2011

LightAide, Produced by Steve Cahill, Philips

June 2009

Alexis, Produced by Steve Cahill, Philips